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Comments

Byron & Jeannine
02/01/2008 06:21

The Brasic family is an inspiration to us all. Logan, you are in our thoughts 24 hrs, 7 days a week. We are thrilled to know you are at home.

How about some new photo's for those of us who cannot be there to share you daily progress.

Love another one of your uncles and aunts

Byron & Jeannine

PS Lori & Greg I don't have the correct e-mail address's for the two of you. Please send me your addresses.

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Lori
02/01/2008 07:13

I am LBrasic@Ingham.org
There is one pic I took yesterday. I seem to only get the camera out when something new is happening.

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02/01/2008 09:56

Uncle Bunny,

mine is gregory@brasic.com

if you tried using that address recently and it bounced back, no worries. I discovered a problem on the email server this morning and fixed it.... should be working fine now.

Greg

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Lori
02/02/2008 05:39

I discovered an inspirational young man who is featured in "Guidepost" magazine. He was nine when he had his cancer and HP. He is now 23 or so and so well adjusted to his life. His HP was also his left leg.

Google Josh Sundquist and check out his website and videos. I emailed him and he emailed back a phone number where we can call him! This guy plays all kinds of sports, he has the same kind of attitude Logan does and surely makes me feel better about Logan's future prospects.
This is a vibrant young man with a lot on the ball and I think anyone who cares about Logan will feel great relief when they see Josh.

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Lori
02/02/2008 18:26

Saturday 9:30 pm and we (Logan, Abbey & I) just returned from the mall! Yep, Logan actually drove us to the mall where he and I bought new cell phones from Lindenat Radio Shack.
HE DID GREAT!!!
He transfered from the car to the wheel chair in the parking lot and wheeled himself through the mall with no problem. We were gone almost two hours and it was as if we had done this for our entire lives.
Heeeeee's baaaack!!

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Uncle Chip & Aunt Norva
02/03/2008 09:26

Re: 9:30pm Sat. night

YOU WHAT? YOU DID WHAT? WHAT THE... We are amazed but not surprised.
Mall..velous darlings, mall-velous!
Love,
Uncle Chip & Aunt Norva

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Heidrun Ziegler
02/03/2008 10:36

Dear Logan,
Frank told me the whole story of your illness.He showed me the website and I looked at all your photos. I hope you got through the surgery alright. Logan, I have gotten to know you 4 years ago as a self-confident and life-loving young person.
I deeply wish you that you stay such a friendly and confident young man with many good friends around you.
All the best wishes for you, Logan
from Frank's mom Heidrun
(Frank helped me write this)

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Kim Cwynar
02/03/2008 13:54

Hello Mall shoppers!
Yes, Lori, I was teary eyed. And I am not going to look at any other stupid web sites that will just make me more teary eyed. Then I won't be able to see to type. My eyes will be all puffy and snot will run from my nose - It really just isn't a good look for me. Particularly the snot part.

Hey Logan, sounds like you are hanging in there - give them hell!!

I send you all love and prayers every day.

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Lori
02/03/2008 15:12

Logan made the trek down to the basement with no problems. He's been enjoying the big screen TV and a roaring fire in the fireplace. We are waiting for the Superbowl to begin after having a houseful of loving family and friends stop by.
It's been a nice day and tomorrow will be even more nice when he gets his staples removed.
Stay tuned to the blog tomorrow for the pathology report info. which we will get from Dr. Les when we see her.

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Lori
02/04/2008 13:38

Dr Les removed the staples and only a few were painful. Since the staples were closing skin from his trunk and with skin that used to be his thigh Logan said he was feeling pain from two different parts of his body at the same time. Weird sensations!!
OK...Dr Les said that 70-75% of the tumor was zapped by the chemo. This is a good result for a pelvic tumor, as they usually do not respond to treatement very well at all.
Every other question I posed was really unanswerable. It's not fair to ask someone to guess what the future will bring. So I had to try to be satisfied with her 75% and her statement that she was pleased.
Wednesday we go to the Oncology Clinic.
As far as I am concerned we are 2/3 done with this ardious trial. A lot behind us now, with just some chemo to endure now. Everything else from here on out is familiar to us. Heck, we can handle chemo. We know that routine...(doesn't mean we like it, but we've looked that beast right in the eyes before and Logan has poked it's little corneas and tied it's ugly eyelids shut!)
LOGAN ALEXANDER BRASIC, ARE YOU READY FOR BATTLE??!!!! HOY! HOY! HOY!
... i want to fight this one for you, my dear brave boy! I wish I could, with all my heart. Mom

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Lori
02/04/2008 14:23

Wow! I swore I already posted a blog about the path report...oh, well maybe we will end up with two, or maybe I didn't hit the submit button?

75% of that tumor responded to the treatement. Dr Les said she was pleased. The tumor was encapsulated,and it appears that the soft tissues & bones surrounding it were negative for sarcoma.

Now any cells that might be floating around are about the get the you know what kicked out of them. They have no ossicified tumor to hide inside. They will be vunerable to the dioxirubicin and cisplatin that will begin to course through Logan's veins in just a few days time.
No date for chemo yet, but Dr Les cleared him to start. It might be as early as Wed.

I for one am ready to get this done. The sooner we begin the sooner it will end.





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Aunt Gaelin
02/05/2008 05:16

I don't know how to feel about all of that, Lori. I think I got stuck at the feeling pain in two parts of Logan's body part...I so long for a pain free life for Logan. It is coming, I have to believe that he is almost there!
I love you all.
Thanks for the updates.
Gae

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Renee
02/05/2008 07:39

Never having been one to follow instructions well, I have posted the last post on the "December/January" page. But just because I am out of synch, does not mean that I find Logan any less inspirational. Not to mention how well all of the supporting characters have held up. Not that I am calling Lori, Greg, Linden and Abbey "characters". I do not know Abbey well enough to do that! You are all in my hearts and prayers. As soon as Emilio & I kick this bronchitis, we will come & visit - bearing edible, fattening gifts.

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Lori
02/05/2008 15:16

Hey Renee,
Just got the 6 v 6 paperwork in the mail. I also, coincendentally just sent Kelli Hoover an email article about amputees playing soccer with able bodied players. Told her to make sure Jackson Parks and Rec were given plenty of notice that Logan would be returning at some point and would want to play!
Thank God soccer season is coming cause I am needing the exercise. I have been eating with no thought or remorse for three weeks straight now!
Glad yo and Emilio are better! One year old! That went fast!

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Mark S.
02/06/2008 06:15

Hey, Logan. Glad to hear that you're home, and it sounds like you're moving around pretty well. Keep it up!

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Suzanne
02/06/2008 10:27

Hey! It is awesome to read the updates on Logan. He is an inspiration. The NW school paper had a nice article on him. Continued prayers for healing. Hope to see some of you at 6v6 soccer, Logan too sometime soon.

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irene
02/06/2008 11:07

Hi all!
I'm excited for all of you as you embark on trial 3 of 3! Quote of the day from my Food Bank calendar is for Logan: "Don't let what you can't do interfere with what you can do." Quote of yesterday is for everyone: "Happiness is not a destination. It is a method of life. ~Burton Hills
Have a great day!

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Lori
02/06/2008 13:34

We're back at the cage! Chemo to start tonight. Doctor Scott, the oncologist, was very positive about the tumor pathology reports. We will be here for at least four days. Judee, please hold off on food delivery until the weekend. I hope everyone is staying safe in this outrageous snow storm. Take care,

Logan

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The Chemo Kid
02/06/2008 13:38

The reason that last post was signed "Logan" is because I was typing for my mom while she told me what to say haha. I accidentally signed it "Logan" out of habit. Sorry!

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Uncle Chip
02/06/2008 14:47

The Chemo Kid rides again. Soon to be off that horse as life becomes more stable. No pun intended. :)

Always thinking of you, always loving you.

Uncle Chip

P.S. Lori,thanks for keeping all of us so well informed. You are one fabulous mother,wife,daughter,sister,niece...you get the picture. I love you.

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Mr.Smith
02/06/2008 17:50

hey..i hope your feeling amazing..and hopefully if u are up to it, i am gonna be intown this weekend..gimmie a call



KSMITH

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Kim Cwynar
02/06/2008 18:08

Hey Logan and et. al. (can you tell I am writing another paper again), we'll be thinking of you while you are in the birdcage. I hope you keep peeing!! Drink and pee - prehydrate!

I am unsure how often David and I will be able to deliver food - David's dad had a stroke today and we don't know yet what we will be doing for him. It seems mainly to have affected his speech and his arm. But we will work something out.

As always you all are always in our thoughts and wishes!!
Tons and bunches of love and kisses and prayers.

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Lori
02/07/2008 06:48

Kim and David,
I am so sorry to hear about David's Dad. I will be sending prayers and postitive thoughts your way.

I have some delicious chicken soup in my freezer. Do you want some back??? :)
...sorry, not the best time for a joke.

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Lori
02/07/2008 11:56

Me again!

Well, yesterday was good, yet bad. What we learned from the oncology folks is probably the best news we could have gotten. Considering pelvic tumors don't react well to chemo, the 75% reduction of the tumor was deemed excellent. All of the pathology reports are also positive and we were again told that there is an 80% cure rate for Logan. Maybe even higher becasue his attitude is so great.
I try not to dwell on the 20% possibility. 20% is pretty darn small, and if I bought an item that was 20% off I wouldn't even feel like I saved any money. 20 cents off a dollar...not so big.

A Story of Yesterday
I feel like all my life I have been standing safely in the middle of a big beautiful meadow which goes on forever.But this place has dangers. It is enclosed with a monsterously powerful electric fence. I've regretably seen people touch this fence and the powerful burning charge results in agony for them. It is very difficult to think about someone enduring that. I've always hoped I would be different and not have this in my life.
I've even designed my life to stay in the middle of the meadow. Safe, secure and insulated away from what causes pain.
However, today when I went to learn about Logan's cancer I had to bravely walk right up to the fence and stand there. I could hear the lines buzzing, charged by the fierce power crackling in the air, potential pain, potential agony... so I am terrified. But my son is with me and the only choice we have is to stay right there. To hear what the doctors have to say. Together. The distraction of that fence is almost overwhelming. And he stands so close to it...so very close, and I can't grab his hand and lead him away from it and I can't take his place. The only comfort I have in this is the compassion he offers me in his smile and the wisdom his eyes. They tell me he can stand close without touching.

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Lori
02/07/2008 15:19

For Tyler Rebecca Byrd Smith,
I got a letter from your Mom and Dad today. They gave me your website address and I looked you up. Your pictures are beautiful.
Thank you for helping Logan so much. Your folks made a very kind donation to help us out. I am so sorry that the money was made available through the fact that you lost your fight with cancer.
The donation was to honor you. To honor your courage and your bravery and maybe most of all your dignity.
I just made a friend in you. When I looked into your face on your website. Thank you, sweetheart.
May God bless your family. Especially your Mom and Dad because I know how hard it is to have a child with cancer.
Your memory is a blessing I am sure.
with the greatest respect for what you endured and the light that is you.
Love to you,
Lori Brasic
Logan's Mom

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Lori
02/07/2008 16:25

Another thank you
To my Temple Beth Israel family. Thank you for all of the delicious looking mealsso kindly delivered this evening. Judee, I just enjoyed a hearty bowl of your turkey and rice. It was delicious!! (applesauce to follow)...:)
It is a real comfort to heat and eat something that tastes like it was made by my own mommy! Seriously! After a day of big emotions, filling my tummy with good food really is a blessing.
I probably would have just fried an egg or eaten fast food tonight...or maybe just had popcorn.
I love you, TBI family!



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Kim Cwynar
02/07/2008 18:15

Hello All.
Lori, you always make me cry. I told you, red puffy eyes and snot is not a good look for me.

You can keep the chicken soup - it was made with carrots from my garden - I did not get to dig them up before the first big freeze and snow - so during one of the many melt offs - I went out just to see if there were any left - and I had about 40 carrots!! SO, organic carrot, chicken noodle soup!!

I am thinking that Judee's turkey and rice sounds good. maybe I'll ask her how to make it!!

Lots of love and prayers.
Kim

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Grampa
02/07/2008 20:50

Tonight, I went to the cage to check out my grandson. He was sleeping the sleep that I don't like. The sleep that reflects the chemo sucking at his energies. The drowse that makes him forget to say, with a wink in his voice, "Thanks for comin Grampa", So I stayed and watched a quiet while,then, left him to his calmbat. I came lonely home; missing the contact that inspires. I thought I'd get some Logan by re-reading this Torah of a blog site that has been prayed over by so many during these past days of awe. These volumes of words and phrases and thoughts and feelings and wishes and promises and jokes and tears and teasings and blessings and lovings and lovings and lovings have taken on a life of their almost own. It is "almost" because, as I felt my way through the pages, I became aware that every thought and feeling contained in these offerings of the heart are really reflections of the very essence of this "Chemo Kid"....."Chemo Man" and his mom and dad and sister. So, it was good to re-read the blog. I am going to bed filled with this essence of Brasic and I am not lonely.

Love to every of you,

Grampa Barry

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Paula "Mom" Sharp
02/08/2008 05:40

Hey, Logan,
Glad to hear you are doing well. My prayers continue daily for you. Because you are so positive and inspiring, you make the rest of us forget all the "small stuff" that bogs us down. God is working through you in a very big way. Keep smiling!

Hey Abbey,
Tell Logan to quit showing off...the rest of us can hardly keep up with him. Give him a hug for me. Keep up your strength, girl. You are some of the best medicine there is.

Hey Lori, Greg and Linden,
You are in my prayers daily. Keep up the fight - Logan's attitude is a true reflection of how he was raised. I miss the summer Sharp's house parties when all the "kids" were still in high school.

Keep going, everyone!
Paula "Mom" Sharp

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Lori
02/08/2008 06:26

Paula,
HI! I miss those HS days too. Remember all those soccer games? Of course you do!
we shivered or we baked...
I am working with Kelli Hoover at Jackson Parks & Rec to start discussing a soccer tournament fundraiser for Logan this spring.
She is interested! I am excited about it!
I will keep you guys posted becasue it would be wonderful to get some of the NWHS kids to set up teams and participate!
If Logan is up to it he just might play too!

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02/08/2008 06:28

To Logan...I just had to take some moments to share how you inspire me with your courage...your hope...and your wisdom. I met you once, with Abby, right after you two had gotten engaged. I was touched by you both. Your excitement for the future, your genuine joy over each other and the relationship you share. Then along came this horrible cancer. But you...wise young man...faced it head on with dignity and courage. I have been following your journey through your blog page and each time I read I am reminded of how remarkable you are. I see a young man who is facing adversity and utter tragedy with such grace. I want you to know that Mr. Buchler and I are praying for you (and for your family). We are so honored to know and share a bit of your life. We are moved and inspired by you and know there are beautiful days ahead. Keep on keeping on...and keep on being you. Sincerely, Janelle Buchler

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Aunt Gaelin
02/08/2008 07:50

Thinking of you.
Always

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Shedd Family
02/08/2008 11:51

Lori and family-
Your story of yesterday is beautiful and heartwrenching at the same time and once again I'm left without words. Judging from the posts on this blog though, I sense that you're surrounded in your meadow by others who love you and love Logan and are willing to stare that fence down with you. So you do what moms do best, and we'll all stand around you and your family and help you stare it down. Love and prayers-

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aunt lisa
02/08/2008 15:34

Hey Log, Martha's herbs are gowing and look healthy and strong! We comment daily on what a great a gift you thought of... praying daily that you will soon be as healty and strong physically as you already are emotionally! Maybe you can even look as pretty as our herbs...xo, aunt lisa

P.S. Martha's mom asks daily about you and wants you and Lori, et el that she's thinking of you and praying.

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aunt lisa
02/08/2008 15:34

Hey Log, Martha's herbs are gowing and look healthy and strong! We comment daily on what a great a gift you thought of... praying daily that you will soon be as healty and strong physically as you already are emotionally! Maybe you can even look as pretty as our herbs...xo, aunt lisa

P.S. Martha's mom asks daily about you and wants you and Lori, et el that she's thinking of you and praying.

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Paula Sharp
02/08/2008 15:58

Lori,
Count us in for the soccer fundraiser! [But I must request bake weather, not shiver, PLEASE!] Did you know Heidi is the new NW JV Girls Soccer Coach? She's very excited! She and Mark may be able to help recruit some players for this benefit from both NW and SAU.

Kelli Hoover is "distantly" related to us. Please tell her hello from "Paula (Bedore) Sharp, who is Dick and Marv Bedore's youngest kid." And tell her to let me know if I can help in any way to make this benefit game happen. I'm at CMS Energy just down the road from her work. paulabedoresharp@netzero.com (home) or pmsharp@cmsenergy.com (work)

You guys are awesome...just keep going and drag everyone else along with you. It's the greatest ride of our lives!
Paula

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Lori
02/08/2008 17:02

Thank you very much Paula for volunteering to help! I will definitely contact you when I learn more.

That is awesome about Heidi coaching! I hope she has a blast and the parents aren't too hard on her. :P

Logan is doing well with his chemo, today he got his Canadian crutches, the ones that rest on his forearms, and he got up to the PT room to try some stairs with them. He says he really enjoys them because they are light weight but just slightly harder to balance with. I know he is up to the challenge though and we will master them in no time!

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02/09/2008 09:17

Hey Logan,

Hope you got some good sleep last night. I'm getting ready to head in to the plant and do some more work on their system.

I was reading mom's post above and all I can say is, whatever you do, DON"T PEE ON THE ELECTRIC FENCE!! ;)

I will call you later today to see how you are doing.

Love you son,

Dad

Reply
02/09/2008 09:24

I've been working on adding a forum to the Brasic.Com website. When It's open I will move this blog onto that forum. This current site sometimes looses posts and whole sections of the blog, so I will save all content to the new site.

Logan, you will need to take a hand in the new Forum to help your mom upload photos to it. For anyone reading this who is HTML enabled, the new forum will accept HTML scripts so you will be able to post photos to it from any photo hosting server.

If you don't get what that meant, don't worry, all is well, all is well. ;)

Dad


Reply
02/09/2008 09:25

I've been working on adding a forum to the Brasic.Com website. When It's open I will move this blog onto that forum. This current site sometimes looses posts and whole sections of the blog, so I will save all content to the new site.

Logan, you will need to take a hand in the new Forum to help your mom upload photos to it. For anyone reading this who is HTML enabled, the new forum will accept HTML scripts so you will be able to post photos to it from any photo hosting server.

If you don't get what that meant, don't worry, all is well, all is well. ;)

Dad


Reply
02/09/2008 09:32

Grrr I won't miss this blog's proclivity to create multiple posts :P

dad

Reply
02/09/2008 09:48

BTW - I had saved out the November blog section back in December before this server lost it. I also just saved out December-January just now so it too can be archived.

Nothing from this site will be lost except for October (October's disappearance prompted me to start saving the sections) and there weren't many posts in the October section.

The new forum will also allow you to use an Avatar on your name (like a photo of you or a graphic of some type). When the time comes to switch, if you want an avatar and can't figure out how to add it, you will be able to email me the file and I can attach it to your account.

Logan also will be able to do these tasks, and Lori too if she wants to learn how to do it. It's not hard.

Dad

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Lori
02/09/2008 14:33

Saturday, 5 pm and we are HOME!
Dr Scott said Logan was drinking enough liquids and this chemo does not have to be flushed out like the other stuff does.

We just have to return to Lansing to the clinic on Monday for a blood draw to keep an eye on his white blood cell count and immune system.

Two weeks off and then the next three chemos come back to back three weeks in a row.

By then we will be feeling like we are ALMOST seeing an end of the tunnel!!
So cool to think about.

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Uncle ben
02/09/2008 14:41

Welcome home Logan,
One round down, how many more to go? Drink your fluids. Watch the winter wane, the spring spring, and the early summer warm your cancer free bones as you process these poisons of prevention. May your muscles multiply, your balance re-center, your dexterity refine, and your mobility continue to materialize.
In time.
For now process the poisons, detoxify, and piss 'em out.
Peace and love,
Uncle Ben

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Uncle Chip
02/10/2008 12:26

Logan,

We always feel more at home when your at home. Just a couple more bases to round and you'll slide safely into home for
good!!!

Love to all.

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Lori
02/11/2008 11:39

Monday morning at 6:30 am Abbey called me on the intercom (recently purchased from a stupendous saleswoman at Radio Shack, named Linden).
She said Logan needed me. I thought he had a bad dream becasue this chemo gives him night terrors. But, no it was excruciating phantom pain.
Long story short, it looks like sometimes they can flair up and become very painful. We went into the clinic for iv pain mgmt, blood work to see what his ANC is, and there Logan filled out the paperwork to be randomized into the next phase of his chemo.
7 hours later we are home and Logan is resting.
Just when we let our guard down we get poked again! I called Dr Les to see if she thinks we should be changing Logan's Nuerotin. He might have to double up on some of his pain meds until this subsides.

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02/11/2008 12:29

I'm looking forward very much to seeing you guys tonight. Do you think accupuncture could help something like this? I will hit the web before I board the plane and see what I can find out about it.

Only 3.5 hours and I will be in the trusty ol' Durango with my lovely wife and another hour will be with my lovely son. Then I will have a lovely sleep. Three hours of sleep last night and about three the night before. I'm a tired dude, but I have a tall Shipyard Export in hand a a comfy seat to sleep in on the flight. See you guys soon.

Dad

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02/11/2008 12:39

A study at Walter Reed Hospital on Iraq war vets with lower limb amputations who experienced pain range 0-4.9 regularly from the amputated limb showed dramatic improvement after 4 weeks of 15 minutes per day of mirror visualization of the limb.

http://www.medscape.com/viewarticle/563972

A study at the University of Manchester showed marked improvement (diminishment) of pain using computer virtual reality visualization of the amputated limb moving. They believe the pain comes from reorganization of the motor cortex after amputation.

http://neurophilosophy.wordpress.com/2006/11/15/virtual-limbs-reduce-phantom-pain-in-amputees/

Gotta run, but it looks as though if the brain still believes at some level that a limb should be there it creates sensation which is often felt as pain.

Love you guys,

Dad

PS - The mirror approach looks really easy to do Logan.

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Gaelin
02/11/2008 13:03

Your phantom pain is pissing me off and breaking my heart.

I wish much peace for you, Logan. Peace and comfort.

Love, Gaelin

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Renee
02/11/2008 14:14

I hate that name! The pain is real. It is the perceived location of the pain that is phantom. Keep strong!

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Grampa
02/11/2008 16:32

Logan,
I am dismayed by today's news. Dad has a good handle on the research. Follow his lead. I will call later this evening and get a report on how much neutontin you you are presently using. I am very familiar with this med as I treat many patients who use it.
We CAN increase every few days and I believe we have a lot of room to make increases. I'll talk with you in a bit.

Love,

Grampa Barry

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Kim
02/11/2008 19:07

Hey You Guys!!

I am glad to hear that Logan is home for a bit. I won't (cough) be coming by (cough, cough). But I will be (cough) sending plenty of prayers and well wishes.

I am thinking of plenty of good karmic thoughts, rubbing Budda's belly (no, not David's), doing meditative "ohms" all in efforts to send positive healing forces.

Hugs, Love and prayers galore!!

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Gaelin
02/12/2008 07:41

Lori-
After our conversation I decided to eat chocolate. It did not clear up the future for me, or take care of the present, but it was tasty.
Next time I will try cheese instead.
If there is anything you need, please, call me. Mom and I make a pretty damn good team, and we are fun to be around too!
I love you,
Gaelin

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Renee
02/12/2008 08:28

Gaelin,
Just so you know, the MSU dairy makes a pretty tasty chocolate cheese. Tastes like fudge, but is healthy for you.

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Lori
02/12/2008 13:17

Chocolate cheese...tastes good and binds you up.
Well, cheese tastes good too...never mind.

Just stopping by to say things are really slow right now. Logan is in the chemo doldrums which makes me feel depressed and sad for him.
He should be coming out of it by the weekend. Maybe he will need a transfusion? Maybe he will need nupegin? Maybe he will need 1,000 hours of sleep? But, whatever it is he will return to us again and then I will be happier.
Doesn't this weather stink??? Doesn't make things any easier does it?

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irene
02/13/2008 15:52

I've been busy and out of touch - just checked in to see how things are going in Loganland.
Lots on my mind from reading the latest posts...but I can't even think of anything funny to say (unless I ask Lisa what kind of "herbs" Martha is growing...!) Isn't it about time for Not Your Momma to cheer us all up with something witty?
I will help with a soccer tournament, and I'm sure Dale would be glad to have a specific task to help as well. you are in our thoughts ALL the time. i'll look forward to hearing that Logan has emerged from the gray Doldrum Mountains. (Lori - maybe if you think of it as a place, like the electric fence, it wil help. And, you can pee in the mountains!) Maybe the gorgeous sun has helped today.
I know that there is nothing like Jewish penicillin, but let me know when you're ready for some "lapsed Catholic" medicine. I can throw in a pinch or two of guilt and self flagulation if you like. I can be there in a heart beat if you want anything. (And remember that beer and Scotch Whiskey have proven medicinal qualities!) xoxoxox

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lisa
02/13/2008 16:11

Hey Log, Hope this finds you feeling a bit better this evening. Martha wanted me to remind you to try the warm ginger ale...love you bud. aunt lisa

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Lori
02/14/2008 05:14

The sunshine has helped! Also, the fact that Logan is slowlyreturning to the world of color. Logan and I both discussed this phenomonon at the same time, with our locla experts without knowing. I called Lydia snd Logan talked to Dr Saah. Neither of them recalls this happening with other patients and they believe it may be linked to the steroids he takes prior to this chemo. Luckily, it only lasts about 48 hours. They are willing to substitute another drug for the steriod drug next time to see if that helps.
The increased doses of Nupegin seem to be helping with the PLP, but this is only temporary as he will most likely grow tolerant of this dose too.
We have done mirror image therapy twice, on our own with no direction. Logan can feel phantom movement in his left ankle when he concentrates on it. That is the feedback to the brain we are looking for. With dillegence, I hope he can experience more feedback from his foot and toes. This should help out a lot.
I have made several contacts in the community to insure we acquire more information about this therapy so we can "do it right".
Also, today is the day that my friend Renee has organized a lunch benefit for Logan at the Lansing Board of Water and Light. Thank you Renee and know that Logan and I are sorry we could not attend!

Reply
Renee
02/14/2008 11:50

Hey all,
Logan... be of good cheer. Remember that the black & white are temporary and that the colors, wwhen they return will be all the more intense and beautiful.
The lunch was fun. We had 10 crocks of soup, including bear stew, squash soup, bean soup and clam chowder. There were at least 6 types of dessert foods. And even a few salads for good measure. Craig Smith brought the bean soup and a chocolate mousse. The operators and maintenance crew at the Lansing Board of Water & Light Eckert Station raised $258. The System Integrity & Customer Project and the Marketing groups raised $289. (Lori...more money came in after you left...let's get together for lunch next week so that I can give it to you). The Grand total: $547.
On a different note, Lori, it turns out that one of the ladies here, Barb Bellanger knows you and your family. Her daughter babysat for Logan and Linden many years ago. She said that she even babysat for you one New Year's Eve. Small world, huh?
Let me know how to down load or send you photos of the lunch.
Love to you all!

Reply
Lori
02/14/2008 12:48

CALLING ALL FAMILY& FRIENDS!!!
We need submissions of inspriational quotes for a quilt someone is making for Logan.
I forgot to ask for these earlier.
So, please submit a quote or message for me to pass along to go on the quilt.

I need to get them to her by Friday, aftenoon (tomorrow).
Thank you!


Reply
Renee
02/14/2008 13:32

Live Simply
Love Generously
Care Deeply
Speak Kindly
Leave the rest to God

Reply
Renee
02/14/2008 13:44

Life is not a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming, 'WOW! What a ride!'

Reply
02/15/2008 04:44

I see that Lori and Frank have registered at the new Forum as well as Logan and I.

I added a section yesterday called "Read This First" which has some screen shots and
directions about how to register there.

If you still have problems figuring out how to register there, or how to view the new blog area (called Logan's Family Blog) either post here for help or email me at gregory@brasic.com

This old blog area will remain open until about a month from now to make sure everyone has a chance to register in the new Family Forum/blog.

Greg

Reply
Byron & Jeannine
02/15/2008 07:20

Greg;

I followed your instructions for registration. I am confused. The only way I communicate with you guys is here.

What am I doing wrong.

Reply
Lori
02/15/2008 07:47

Uncle Bunny,
I see you as a registered user. YOu just have to wait for Greg to give you permissions and then you will have access.

Reply
Lori
02/15/2008 07:52

Please don't get discouraged! We will keep this blog up and running for another month so everyone can get used to the new one.
I know change is hard..but if Logan can handle his one legged-ness I am sure we can handle this change! Right bloggers? Right!

Reply
02/15/2008 09:25

Byron,

you did the registration just fine. Your account is now given permissions to see the Logan Blog area of the Forum.

Now you just log into the Forum and go to the area called "Logan's Family Blog" and click on those words (they are a link to that page).

When you go there you will see a new Sticky Note called "Sticky: February blog and Logan update" which Lori just posted. If you click on the words "Sticky: February blog and Logan update" you will go to that topic, you can read what Lori posted and you can reply.

It works just like this blog, just are a lot more possibilities. For example, I have this really great picture of Lori in NYC I will go add as an Avatar on her account. When you read her posts you will see her face (the Avatar selected to represent her) to the Left of the post.

Try it out and you will like it.

Greg

Reply
02/15/2008 09:27

So far on the new Forum I have new registrations activated for:

myself, Logan, Lori, Byron, Mitch Weisbrod, Bill O'Dell, Russ Olson, Diane Carrol, and Gaelin. All are now activated and can read and post.

Greg

Reply
Lori
02/15/2008 13:18

I can't get into the new blog site right now so I am going to just use this one until we get things figured out.

Logan is feeling more like himself again. He left the house alone last night and drove into Jackson to meet Abbey for dinner and a movie for Valentines Day. He dressed in a nice pair of jeans and a dress shirt. He looked great! It was difficult to stay seated when he left. A week ago I would have followed him out to the car and reminded him to be careful, opened the car door for him etc. I just casually told him he looked very handsome and to have a good time. I waited to hear the car door slam, which told me he made it into the car with no trouble and then he drove away.
I just wanted him to be a dude heading out to meet his woman.

Reply
Gaelin
02/15/2008 14:08

Wow, Lori! What a great story.
I love the thought of Logan and Abbey out on a date.
I tried to get around on the new blog earlier and had no luck. I can handle it though-thanks for the "we can do this" pep talk.
I will try again tomorrow.
xoxoxo

Reply
Lori
02/15/2008 14:26

I highly recommend you contact Greg. It is a bit daunting at first, but I am starting to see the benefit of this new blog. It will connect us all with a lot more tools.
For example we can send each other private messages, and see everyone who has registered. Once you get on just lurk around and you will see. It will be better in the long run.

Reply
02/17/2008 18:02

I just wrote another Help area post on the new Forum about how to navigate and how to post.

Some people are posting but using the New Topic button. You probably don't want a New Topic as then you won't be writing on a post other people typed to because you created a New Topic. Instead, click the red words on the left side of the screen that tell you what Forum areas you have available. Once inside an area (for example "Logan's Family Blog") you will see notes other people created. Look for the one called "Sticky: February blog and Logan Update". Click on it's name and you will go to it. If you want to reply to that note, at the bottom of the note you will find a button called Post reply. Use that and when you are done typing, click the button called Submit.

Does this help?

Greg

Reply
02/11/2009 03:46

The link is not working at the moment showing some error in the processing plz make sure you have posted the right one.
Good luck.

Reply
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Reply



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